United States, Canada, Australia Only
Since 2012, the DIPG/DMG Registry has offered over 400 free consults to newly diagnosed patients from the doctors and researchers of the Registry. To receive a free consult, please click the link below and provide your information so we may contact you to assist. Most inquiries are followed-up within 72 business hours and the doctors or researchers of the Registry may be able to provide information on or recommend active clinical trials for which patients may be eligible.
Further assistance may be obtained by registering in the DIPG/DMG Registry (hyperlink of “registering”), and contacting the Registry staff (hyperlink of “contacting”) thus providing information to help with more specific questions. Secondary contact after registration in the Registry may take 2-3 weeks, depending on delays in submission of data from your treating hospital. You can check to see if your data has been submitted by contacting us.
Please be aware that all consults are not intended to replace direct contact with a DIPG/DMG medical professional locally, nor are they intended to recommend particular treatments. The intention of the free consultation service is to provide patients and families with relevant tools to assist in making good decisions to help with their care. Please be aware that consults with non-guardian family members may be limited due to medical privacy concerns.
Consultations are usually most efficient when the diagnosing or treating physician begins the process, since the consulting physician will need to review the patient’s medical records. As a patient or family member, you may ask the treating physician to contact us for a consultation. However, patients or family members may also contact Registry experts directly.
As part of every enrollment in the Registry, all radiological submissions are peer reviewed by the DIPG/DMG Registry team. Although rare, in some cases, abnormalities may be detected that can change the treatment path of the patient. In these cases, the Registry team will reach out to the treating physician to communicate this information. This is a free service of the DIPG/DMG Registry.
For additional information or questions, see below: