Consultation

The DIPG experts participating in the International DIPG Registry are available to patients, their families, and physicians for consultation. They may be able to provide information on or recommend active clinical trials for which patients may be eligible.

Consultations are usually most efficient when the diagnosing or treating physician begins the process, since the consulting physician will need to review the patient’s medical records. As a patient or family member, you may ask the treating physician to contact us for a consultation. However, patients or family members may also contact Registry experts directly.

Unsure who to contact? Send us a message and we'll help.

In the United States, please contact:

International DIPG/DMG Registry Coordination Center

Trent Hummel, MD
Associate Professor of Clinical Pediatrics
Co-Director of The Cure Starts Now Foundation Brain Tumor Center
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio

1-877-349-8074

Katherine Warren, MD

Clinical Director, Pediatric Neuro-Oncology
Dana-Farber/Boston Children’s Cancer and Blood Disorders Center
Boston, MA USA

In Canada, please contact:

Ute Bartels, MD

Staff Neuro-Oncologist
Division of Hematology/Oncology
Professor of Pediatrics
The Hospital for Sick Children
Toronto, ON, Canada
416-813-5249
416-813-5327

Eric Bouffet, MD, FRCP(C)

Director, Pediatric Neuro-Oncology Program
Professor of Pediatrics
The Hospital for Sick Children
Toronto, ON, Canada

416-813-7457
416-813-5327

In Australia, please contact:

Timothy Hassall, MD

Senior Staff Specialist in Pediatric Oncology
Department of Oncology
Lady Cilento Children’s Hospital
South Brisbane, Queensland, Australia

In Europe, please contact:

Austria

Irene Slavc, MD

Belgium

Stefaan Van Gool, MD

Croatia

Filip Jadrijevic-Cvrlje, MD

Czech Republic

David Sumerauer, MD

Denmark

Karsten Nysom, MD

Finland

Sanna Maria Kivivuori, MD

France

Jacques Grill, MD, PhD

Germany

Christof Kramm, MD

Greece

Antonis Kattamis, MD

Iceland

Halldora Kristin Thorarinsdottir, MD

Ireland

Jane Pears, MD

Italy

Veronica Biassoni, MD

Lithuania

Giedre Rutkauskiene, MD

Netherlands

Dannis van Vuurden, MD, PhD

Norway

Ingrid Torsvik, MD

Poland

Marta Perek-Polnik, MD

Portugal

Maria João Gil-da-Costa, MD

Russia

Ella Kumirova, MD

Slovakia

Ladislav Deak, MD

Slovenia

Lidija Kitanovski, MD

Spain

Ofelia Cruz Martinez, MD

Sweden

Stefan Holm, MD

Switzerland

Nicolas Gerber, MD

Turkey

Rejin Kebudi, MD

United Kingdom

Simon Bailey, MD