Our Team

The International DIPG Registry and Repository

The Clinical Management and Research Support Core (CMRSC) at Cincinnati Children’s Hospital Medical Center is the coordinating center for the Registry.  A whole team is needed to organize the data, follow-up with each of our participants, handle the specimens and organize the research.  Participants and their families, physicians and researchers will speak with one of our staff members below.


Coordinating Center and Staff

Coordinating Center

Cincinnati Children's Hospital Medical Center
Cancer and Blood Diseases Institute
240 Albert Sabin Way, MLC 7018
Cincinnati, OH 45229 USA

DIPG Tissue Repository Site

Cincinnati Children's Hospital Medical Center
3333 Burnet Ave
Cincinnati, OH 45229 USA


Lindsey Hoffman, DO  
Study Chair

Program Director, Neuro-Oncology
Phoenix Children's Hospital
Phoenix, AZ, USA


Katie Black, BS  
Clinical Research Coordinator

Clinical Management and Research Support Core
Cincinnati Children’s Hospital Medical Center
Cancer and Blood Diseases Institute


Chloe Boehmer, BS, BA  
Clinical Research Coordinator

Clinical Management and Research Support Core
Cincinnati Children’s Hospital Medical Center
Cancer and Blood Diseases Institute


Adam Lane, PhD
Statistician

Cancer and Blood Diseases Intstitute
Cincinnati Children's Hospital Medical Center

DIPG/DMG Registry Steering Committee


Ute Bartels, MD

Staff Neuro-Oncologist
Professor of Pediatrics
University of Toronto
The Hospital for Sick Children
Toronto, ON, Canada


Keith Desserich

Chairman, The Cure Starts Now Foundation
Founder, The DIPG/DMG Collaborative
Cincinnati, OH, USA


Craig Erker, MD, MS, FRCPC

Assistant Professor, Department of Pediatrics
Pediatric Hematology/Oncology
IWK Health Center and Dalhousie University
Halifax, Nova Scotia, Canada


Christine Fuller, MD

Professor, Neuropathology
Upstate Medical University
Syracuse, NY, USA


Stewart Goldman, MD

Chair, Department of Child Health & Senior Vice President, Research
Phoenix Children's Hospital
University of Arizona College of Medicine
Phoenix, AZ USA


Timothy Hassall, MD, MBBS, FRACP

Eminent Staff Specialist in Pediatric Oncology
Co-Director, Children's Brain Cancer Center
Queensland Children's Hospital
South Brisbane, Queensland, Australia


Cynthia Hawkins, MD, PhD, FRCPC

Neuropathologist, Department of Pediatric Laboratory Medicine
The Hospital for Sick Children
Garron Family Chair in Childhood Cancer Research
Professor of Laboratory Medicine and Pathobiology
Toronto, ON, Canada


Lindsey Hoffman, DO
Lindsey Hoffman, DO

Program Director, Neuro-Oncology
Phoenix Children's Hospital
Phoenix, AZ, USA


Trent Hummel, MD

Associate Professor of Clinical Pediatrics
Co-Director of the Cure Starts Now Foundation Brain Tumor Center
Cincinnati, Children's Hospital Medical Center
Cincinnati, OH, USA


Blaise V. Jones, MD

Chief, Neuroradiology
Associate Director for Clinical Operations
Medical Director, MRI
Cincinnati Children's Hospital Medical Center
Cincinnati, OH, USA


Carl Koschmann, MD

Assistant Professor, Pediatric Neuro-Oncology
Michigan Medicine
Ann Arbor, MI, USA


Michelle Monje Deisseroth, MD, PhD

Assistant Professor of Neurology and Neurological Sciences
Stanford University
Stanford, CA, USA


Katherine E. Warren, MD

Clinical Director, Pediatric Neuro-Oncology
Dana-Farber/Boston Children's Cancer and Blood Disorders Center
Boston, MA, USA

DIPG/DMG Registry Scientific Advisory Committee


Pratiti (Mimi) Bandopadhayay, MBBS, PhD

Pratiti (Mimi) Bandopadhayay, MBBS, PhD
Pediatric Neuro-Oncologist
Assistant Professor of Pediatrics, Harvard Medical School
Associate Member, Broad Institute
Dana-Farber/Boston Children’s Cancer and Blood Disorders Center
Boston, MA


Ute Bartels, MD

Staff Neuro-Oncologist
Professor of Pediatrics
University of Toronto
The Hospital for Sick Children
Toronto, ON, Canada


Patricia Baxter, MD, MBA

Assistant Professor
Department of Pediatrics
Baylor College of Medicine
Houston, TX, USA


Eric Bouffet, MD, FRCP(C)

Garron Family Chair in Childhood Cancer Research
Director, Pediatric Neuro-Oncology Program
Professor of Pediatrics
The Hospital for Sick Children
Toronto, ON, Canada


Christine Fuller, MD

Professor, Neuropathology
Upstate Medical University
Department of Pathology
Syracuse, NY, USA


Jordan Hansford, BScH, MSc, MBBS, FRACP

Associate Professor
Lead, Neuro-Oncology and Clinical Research
Royal Children's Hospital
Melbourne, VIC, Australia


Timothy Hassall, MD, MBBS, FRACP

Eminent Staff Specialist in Pediatric Oncology
Co-Director, Children's Brain Cancer Center
Queensland Children's Hospital
South Brisbane, Queensland, Australia


Cynthia Hawkins, MD, PhD, FRCPC

Neuropathologist, Department of Pediatric Laboratory Medicine
The Hospital for Sick Children
Garron Family Chair in Childhood Cancer Research
Professor of Laboratory Medicine and Pathobiology
Toronto, ON, Canada


Lindsey Hoffman, DO
Lindsey Hoffman, DO

Program Director, Neuro-Oncology
Phoenix Children's Hospital
Phoenix, AZ, USA


Blaise V. Jones, MD

Chief, Neuroradiology
Associate Director for Clinical Operations
Medical Director, MRI
Cincinnati Children's Hospital Medical Center
Cincinnati, OH, USA


Xiao-Nan Li, MD, PhD

Rachelle and Mark Gordon Endowed Professor of Cancer Biology and Epigenetics
Professor, Department of Pediatrics
Director, Program of Precision Medicine PDOX Modeling of Pediatric Tumors, Ann & Robert H. Lurie Children's Hospital of Chicago
Director, Developmental Therapeutics Core, Robert H. Lurie Comprehensive Cancer Center
Northwestern University Feinberg School of Medicine
Chicago, IL, USA


Ian Pollack, MD

Leland Albright Professor and Chief of Pediatric Neurosurgery
UPMC Children's Hospital of Pittsburgh
Vice Chairman, Academic Affairs,
Department of Neurological Surgery
Professor of Clinical and Translational Science
University of Pittsburgh School of Medicine
Pittsburgh, PA, USA


Katherine E. Warren, MD

Clinical Director, Pediatric Neuro-Oncology
Dana-Farber/Boston Children's Cancer and Blood Disorders Center
Boston, MA, USA

The SIOPE DIPG/DMG Registry

The SIOPE DIPG Registry Coordinating Center is located in Utrecht, The Netherlands.  The SIOPE DIPG Registry Coordinating Center staff are responsible for organizing the research efforts across Europe, including but not limited to, patient enrollment, data entry, specimen donation coordination, research project facilitation, and performance site management.  

SIOPE DIPG/DMG Registry Coordinating Center and Contacts


Sophie E.M. Veldhuijzen van Zanten, MD, PhD
Scientific Coordinator

Pediatric Oncologist/Hematologist
Princess Maxima Center for Pediatric Oncology
Utrecht, The Netherlands



Carin M. Damen-Korbijn, MSc
Registry Coordinator

Dutch Childhood Oncology Group
Utrecht, The Netherlands

Executive Committee Members


Dannis G. van Vuurden, MD, PhD

Pediatric Oncologist/Hematologist
Princess Maxima Center for Pediatric Oncology
Utrecht, The Netherlands


Christof Kramm, MD

Pediatric Oncologist/Hematologist
University Medical Center Goettingen
Goettingen, Germany



Jacques Grill

Pediatric Oncologist
Gustave Roussy Institute
Villejuif, France



Maura Massimino

Pediatric Oncologist
Fondazione IRCCS Istituto Nazionale dei Tumori
Milano, Italy



Ulrich W. Thomale, MD, PhD

Neurosurgeon
Charite-Univesritatsmedizin Berlin
Berlin, Germany